Jul 29, 2008

Meeting Zoe

I met my first heart transplant recipient last night. She was a darling two year old full of energy, and life. When her mom and I went outside, she started running towards us. I just wanted to scoop her up and squeeze her. I don't know if that would have been socially acceptable, but I just wanted to give her a big hug. After meeting Zoe and her fabulous mom Jenn I am feeling empowered about being a heart mommy. From everyone I have talked to about what to expect this next year the answers have been similar. It is going to be life altering and a lot of work, but with many blessings along the way.

I just wanted to say thank you to Jenn for taking the time to meet with me- Maybe in two years I will be helping someone else the way you have... and will ;-) help me.

A big day of 1st's


My big news is.... we get to go home on WEDNESDAY!!! Mia is doing great! She is only hooked up to the feeding tube now, and has been stable for days. I have been doing all her care so the doctors are confident that I can handle everything at home. The only thing I have left to do is to put a feeding tube in. She takes her shots like a champ! I think I might put daddy in charge of the shots, because I don't want her associating my voice with the pain... although she has slept through most of them. We'll let daddy be the bad guy!

Today I fed her from a bottle for the first time. She drank it down- then fell fast asleep. We had to finish up her feeding through the tube, but I was overjoyed she did so well. Tomorrow we take on the task of nursing... something long awaited!

We took our first walk today. I took her outside and we just sat there for a hour- it was very therapeutic to be outside holding my infant- no strings attached! As I walked past the front doors, I envisioned myself bolting out of here. Would security chase me down?? As stir crazy as I am after living in a hospital for three weeks, I don't want to rush her. That, and even if I did make it out to the parking garage there is no car or car seat to aid me in my escape.

Mia had her first bath today! Our favorite nurse wheeled in the tubby and she took her first bath- I didn't get any pic's because daddy took the camera home to take pictures of the kids doing karate. Apparently John has been busy teaching them martial arts in my absence.... fabulous!

Jul 26, 2008

What the Other kid's are up to

The kids have always loved cooking, but Ellie has found a heightened passion for the culinary arts since Nana helped her sew a new apron. They are quite amazing with their cooking skills

This hair cut is a small example of what is going on around the house without the red tape of Mimi's veto powers. Jensen loves it and seems to be able to run faster due to the increase in the aerodynamics of his head, which greatly reduces wind drag.

Jensen and Ellie have become very able on the computer lately with a website that teaches reading. I came home from work one day and walked into Ellie's room and was surprised to see her sitting on her bed with the laptop on her lap. I watched as she dragged her finger across the mouse pad and then gave it a little tap to select a letter. Fun to see them learning so much. I remember we had "Oregon trail" that I did in the 4th grade on the apple computers. I loved to hunt for the buffalo.

Jul 25, 2008

Sweet Heart

Strawberry Shortcake Baby


Wide Awake Baby


"I Don't Do Oversized Flowers On My Head" Baby


"I Just Had My PICC Line Removed" Baby


Sweet Little Baby

Jul 24, 2008

She's on "The List"

Mia is officially on the list. The transplant coordinator brought me the official letter yesterday. I can't quite explain the feeling of having my newborn listed on UNOS. I am very grateful this is even a possibility, yet my heart is broken all at the same time. Organ donation is such delicate topic, especially when it involves babies. I read a story on my friend Kim's blog that was really touching. Her baby is the recipient of a heart transplant- he is super cute! It is very comforting to know there are families out there living normal lives with their babies who have donor hearts. Our transplant coordinator is going to introduce us to a local family who has a daughter who had a heart transplant a couple years ago. It will be nice to see her running around... a sign of things to come.

Now we wait, I am hoping that we will get to take her home during the waiting process- it could be months before a donor heart becomes available. I would love to have some family time together at home instead of waiting here.

Today was a monumental day- we are now "on the floor" which means we are out of the ICU. She has to learn to slow down her breathing so she can eat. She is currently getting fed through a feeding tube, and is only getting vitamins through her PIC line... YAY Mia!! We are hoping she will be eating from a bottle soon. Tomorrow's jobs: learn how to such/ swallow, and breathe slower. I will try and get some updated pictures of her tomorrow- she looks much better without all of the tubes!

Jul 22, 2008

A Million Thanks

Thank you EVERYONE! I wanted to write a quick blog thanking everyone in our lives- you all have been so wonderful!!!!

I am overwhelmed with the support and love we have received the past couple months. I am very behind on my thank you notes... so here goes. Maybe when things settle down I can do a better job than posting a blog ;-)

First I want to thank everyone who has watched my kiddo's and who has volunteered to watch the kiddo's. It has been really difficult to be away from them, and I am so happy that they have been with people that love them. I know how much work taking on extra kids can be- so thank you for loving them for me! The kids always give me a full report of how much fun they are having- they don't even miss me!! Also, a huge thanks to my friends who have brought my kids up to see me- I miss them so much.. thank you!

Thanks to all the hardwood installers- tile layers, door hangers, painters, trim people, decorators, and all the other remodeling terms that I don't know- I know how much work you have done- Thank you sooooo much! I can't wait to see the house when I finally get out of this hospital!

A Huge thank you to my mom- this would be a lot more difficult without her. I know I have told many of you how wonderful my mom is- but this experience has confirmed the fact that she is an angel!! Thank you to my girl friends for sending me off with a BBQ and massive "hospital survival" bag (John ate most of my KitKats). Also, Bishop Brian thank you for the emergency treats and 40 lb bag full of reading material ;-) Ok, maybe I should be more general...

I have loved everything that everyone has brought up to me and sent from out of state. My heart is so touched from all the cute things- Mia is already spoiled at only two weeks old. I am thoroughly enjoying the flowers, stuffed animals, cards, baby clothes, necklaces, hair clippies, treats, pictures, picture taking, toys, keepsakes, baby music, decorations, yummy food, drinks, magazines, picnic lunches, and notes to Mia. I am trying to take pictures of everything- in hopes that someday I will scrapbook.... Yeah right!

I am so grateful to have so many wonderful people in my life. I have truly felt blessed and it is from all of your support. I have loved listening to your voice mail- sorry I haven't returned a lot of calls. So many emails have brightened my day, and it seems like visitors show up just when I need them!! Also, thank you for the support through the blog- a mommy always loves to hear how darling her baby is ;-) Oh, and thanks for stealing me away to take me out to eat- it is a nice break from the hospital food.

A big thanks to my man for juggling the kids, work, house projects, and being up here as often as he can. All this and he still manages to update the blog. Mia is lucky to have such a great daddy!

Mia is such a sweet heart, and is so lucky to have so many people fighting along side her. Every day she hits a new milestone, and everyday I am told by multiple people of the prayers said in her behalf. Thank you for the prayers! I am very aware of the blessings that have come from all of your prayers... Thank you!

So thanks everyone- I know this blog doesn't cover it all, but I thought I needed to at least let you all know how appreciative I am!

Two weeks old!



It has been an eventful two weeks for us all. Yesterday Mia finally got her breathing tube removed. We are so glad for this since it means she has recovered even more from her surgery and her lungs have gotten stronger. Another step towards a healthy Mia. Her cry is raspy due to the tube that has been in since last Thursday. She even got an ounce of formula through a feeding tube to see how her stomach would do digesting food. That was Sunday, and today they are supposed to try a little milk to see if she is ready. If she is, Mia will slowly be introduced to milk through a bottle since it takes a lot of energy to nurse, and since they need to monitor amount of food taken in. Mia is really really hungry. She keeps trying to eat Mimi's arm, and when the breathing tube was in she was actually sucking on it.

Oh, and they finally told us how long Mia was at birth! A couple weeks late, but she is 17 inches long! What a shorty. Mimi has nicknamed her "shortcake." That will be the first of many names, since we are nickname people.

Today Mia's IV from her head was removed. Thank goodness. Poor thing looked so uncomfortable. Tomorrow Mia will be listed on the heart transplant list. What we know so far is that we had better get used to not being able to plan everything with a time line. The donor heart could arrive tomorrow, or it could arrive in 4 months. That part is unpredictable. Once the heart transplant occurs, it is 2 to 4 weeks in hospital for recovery before going home. The good side of having to wait is that she will have time to grow stronger with hopes for a quicker and stronger recovery. As far as taking her home with us while we wait for transplant depends on Mia and how she progresses. Today having the breathing tubes removed was a big step in the right direction. On another good note, there are no other babies on the transplant list, which covers a four state area.

Jul 17, 2008

Mia's Hybrid operation looking good.

The procedure took about 3 1/2 hours and went well. She is in her post op room now and vitals are stable. The incision is about 2" long, and centered on her chest. Her and mom have twin scars. I am sure that they will have a special bond as they share similar heart problems. We look forward to the possibility of her becoming stable enough to take her home while waiting for a heart.

Jul 16, 2008

Visitors Welcome

If anyone feels inclined to come and say hello at the hospital, please do. Visitors are very welcome. I am trying to get back to work and Mimi is sometimes alone at the hospital. Come and see our beautiful baby. Please bring hugs.

Jul 15, 2008

Hybrid

It has been determined that the plan moving forward is to wait to see if there is any more change in the next few days, and if there isn't, they will do a "hybrid" procedure on Thursday. I have seen too many X-files and Sci Fi for hybrid to sound really great to me. But, here is a good explanation we found of what this procedure actually is:

"When a baby is born with an underdeveloped left side of the heart, the left side of the heart cannot fill with oxygen-rich blood from the lungs or pump it around the body. Instead, this blood is forced back into the right side through a small hole joining the two sides of the heart. From here, blood can only reach the rest of the body by bypassing the lungs through a small duct joining the major vessels from each side of the heart (the ‘ductus arteriosus’). This duct is normal before birth but usually closes in the first few days after birth. Once the duct closes, babies with an underdeveloped left side of the heart are likely to die within the first few weeks of life.

The hybrid procedure is an alternative that avoids major open heart surgery until the patient is older. It involves two or three parts that may be done together or separately. Two parts are usually performed through the blood vessels (‘interventional radiology’) and involve a puncture to the skin for access. The first improves the blood flow to the right side of the heart by enlarging the hole in the wall between the left and right sides of the heart, while the second prevents the duct from closing by using an expandable tube (called a ‘stent’). Together these enable the right heart to pump blood more easily around the body. The third part of the hybrid procedure involves placing tight bands around the arteries that carry blood from the right side of the heart to the lungs (the ‘pulmonary arteries’). These further encourage blood flow through the duct to the body."


This will prepare Mia to be able to wait for a donor heart without relying on drugs to keep the Ductus open. She will be more stable since the drug causes undesirable side affects such as apnea (they have to watch her closely and often give oxygen), higher temperature (no swaddle), Sleepy (she sleeps most of the time.) And there are a few other side effects as well.

Thursday Mia will also be added to the donor list and begin waiting for a heart. It was a tough day to get another reality check of the event to come as well as Mia having to get a blood transfusion. Sweet little Mia doesn't have a vein that can be found that would work for the transfusion so they had to put the IV in her head. She is doing well and still fights for life. We like to think she is also fighting for mommy, daddy, brother and sister. We sure need her. We look to the day when we can bring her home and hold her as long as we want. Thanks again for all who have spoken kind words, uttered our names in your prayers and for all the help and offers of help that have come from all angles. I have found that I cannot stand alone on this, and am truly grateful for all the support.

Jul 13, 2008

Waiting




We are still waiting for the big pow wow to happen so that the doctors and surgeons can meet and decide how to proceed with Mia. What we hear changes a bit from doctor to doctor, but today they were saying that Mia's Left Ventrical is still not beating any stronger. Her Aortic valve is open, but they have a difficult time measuring if it is all the way open due to the fact that in order to measure the flow, they would need a normal amount of pressure pushing the blood, which they don't have due to the non-working Ventrical. This doctor's opinion is that the valve isn't fully open because in his opinion if the flow was there, then the ventrical would begin pushing blood, which it hasn't. We are a little discouraged, but pressing forward. It is still most likely to be a heart transplant, but there will most likely be a procedure or more in order for Mia to be able to stay healthy while waiting for availabilty. The doc said it is usually a couple months of waiting, though it could also be a couple days. Thanks to all for your support. This will be a long haul, but you've seen the pics, we will make it happen the best we can for this sweet little angel. On a good note, she has gained two ounces, to arrive at 7lbs even. All that from an I.V.!!!

Hospital Days

Children's Hospital is decorated with all kinds of animals etc for the kids there. One can tell that a lot of effort has gone into this. There is a pool for rehabilitation, and a craft/game room as well as a huge play area. There are balconies and computers and the list goes on. We have been impressed. This will come in handy over the next months as our hospital stay lengthens.




Jul 10, 2008

Much love from Big bro and Big sis.





Jensen and Ellie LOVE little sister. They have been waiting for so long to meet her and it was sweet to see the look on their faces when they walked in. They both had a million questions about all of the lines and why her eyes weren't open. The question Mimi loved the most was if there was still a baby in her tummy. They took turns playing with her hair and giving her kisses. Jensen's cute comment was, "Mom, can we go to the baby store and buy Mia a car seat so that we can go home and put her to bed?"

Another Big Victory


Dr. Johnston just informed us that the procedure was a success! And done a half hour early at that! He is world renowned in his field with the balloon catheter. They were able to successfully enter through an artery in the groin area (about 3 millimeters in diameter) with the balloon catheter. The catheter is fed in and guided by looking at real-time x-rays (fluoroscopy). The Valve has been opened (it developed being fused shut) and only leaks mildly. Once more, this is far beyond anything we could have hoped for. There was a large worry that upon opening, the valve would let blood through, but also let blood leak both ways instead of closing. Yeah Mia! Another show of the strength in the number of people praying for little Mia. Now, what will really make a difference is how the left ventricle decides to react. There are a couple different medications that stimulate the heart muscle and this will be done with hopes to get the left side of her heart to begin pumping. We have already seen so many miracles. It seems that each step so far, the results have been best case scenario. But if that chamber starts to pump...there is a chance of avoiding heart transplant. We never even thought this was a possibility! There is still only a remote chance, but she is beating the odds so far.

Cute Kids



Our Children are being passed around while we are up here at the hospital, and we were so pleased to have our freinds bring the kids up to see baby last night. They love her so much and are so interested in sister. Our friend Rebecca took the kids home and here is her email on how they did...

"They were so darling last night. Ellie fell asleep in the car, but woke up when Chris carried her in. It was 11:00 by that time, so I got them dressed and told them a story about a baby named Mia and they were all questions about her. It was sweet. Jensen said, 'My mommy told me that Mia’s heart is broken.'"

"Then Jensen said, 'I need my picture of my baby sister while I sleep!' So he went and got it out of the safe place in the suitcase where he put it and kissed it! So darling. "

"We sang a song and I never heard from them again. They were so tired. I borrowed a fan from Leah to make some white noise for them, but they woke up at 7:30. Jensen keeps rattling off where they’ve been…grandma’s, Jaime buddy’s house, Ruby’s house…so cute."

It is good to know that our kids are in good hands. We have had lots of offers for help. In the kids eyes, the are on "bacation."

Jul 9, 2008

Morning Procedure

Mia is scheduled for the procedure at 10:00 a.m. tomorrow morning. We are optomistic and hope for the miracle of not needing a heart transplant. We will take whatever victories we can, and have had all good news since birth. Mimi had this same procedure done when she was in 7th grade. It was unsuccessful in her attempt, but there is a possibility of this improving Mia's longevity as she waits for a heart.

Balloon time, and not the fun kind.

We just got word that the first procedure is going to happen tomorrow. The collective group of doctors has decided that the best thing to do to move forward is to try the balloon catheter. This will enter into the Aortic valve with the hopes of opening up the valve. Hopefully by enabling the flow of blood, the left ventricle will begin to pump to some extent. If the ventricle begins to pump sufficiently, they can discontinue the drug that is keeping the Ductus Arteriosis open. It will then close, with the hopes that there is now sufficient flow. The drug that is now keeping it open has the side effect of slowing Mia's breathing, making it a little sporadic. Another great benefit is that this will buy more time while waiting for a heart. I suppose that the best case that the doctors really have no expectation for, but could happen with some heavenly intervention, is that the Ventricle starts to pump sufficiently on its own that Mia's heart problem becomes solely a problem with the Aortic valve. It would sure be nice to only deal with an aortic valve replacement as opposed to a heart transplant.

Oh, and I forgot to mention that Mimi actually didn't have the full affect of the epidural, which we found out just minutes before delivery. Just one more confirmation that our Mimi is one tough cookie.

Mia is still not able to eat. She is receiving some sugar at this time through her IV, but they are waiting for surgeries before they let her digest. It may be months before she actually eats. They say that with poor circulation, the stomach runs the risk of not being able to properly digest, which can cause need for other complicated surgery. Try and swallow that!

We did get to hold Mia today a couple of times. She is so cute, we just love her. Tomorrow we won't get to hold her after her balloon procedure due to the intubation and pressure bandages etc.

A long long day



The day has come to an end and I can't quite sleep yet since I am waiting to hear back on a procedure being done right now. Here is our day in a nutshell. (Spelling, Grammar and small errors in the facts will be corrected promptly as soon as Mimi gets a chance to check this....

Monday July 7th
8:15 - Check into University of WA hospital to get ready for baby. We met the nurses, doctors and just got settled. A plan was formulated to begin Pitocin at 2 a.m., break the water membrane around 6:30 a.m. and have baby some time in the a.m.

10-12:00 midnight - Here we watched some TV, talked, met some interesting doctors, went on a walk and took goofy pictures of Mimi. I will try and get one on here.

Tuesday July 8th
12-2:00 a.m. - Sleeping on and off.

2:00 - Mimi and I are bright eyed and bushy-tailed waiting for the drugs that would get our baby into this world.

2-4:00 a.m. - Reading magazines, waiting for drugs, and not even trying to sleep due to nurses coming in and out. In the end, we discovered that Dr. Peterson had to tend to two emergency C-sections.

4:15 a.m. - Pitocin started

5:00 a.m. - Nurse realizes that in order for Pitocin to take affect, one must actually open the valve. Here is when the "pit" actually begun. (We realized here that we may have been able to stay home and would have gotten some sleep since we didn't get rolling until now. O-well. I suppose that all the messing around is really a necessary part of the most anything. Think about it.

5-7:00 - John sleeping, Mimi in and out of sleep.

7:15 - John wakes up to a room full of young interns, while wiping sleep slobber from his brow.

7:30 - Water membrane broken to assist baby in beginning to descend.

9:45ish - Dilated to a 7+

10:30 - Dilated to a 10

11:40 - Begin pushing. At this point there are 11 doctors, nurses etc in the room (14 people total with Mimi, myself, Mimi's mom, and aunt) with another 4 pediatricians in the next room waiting to take care of baby. Now that is what I call service! Granted there were a couple of these that must have been interns and did nothing but smile really big, but I liked that too. It's nice to have smilers.

12:00 - Baby born. The cord was around the neck and had to be cut by more skilled hands. Mimi actually got to do some pushing this go round, which was different than the others, where she pushed just a couple times, and very gently. Because gentle pushing is all Mimi is allowed to do, the forceps arrived on the scene. These really do the job. (They also could most likely effectively remove your oil filter from your Ford).

12:00 - Mia was immediately whisked away to the neighboring room. The pediatric doctors cleaned her up while checking vitals. In the time it took me to get a robe on and enter that room, they had already resuscitated her (she was breathing wonderfully), cleaned her up, weighed her and checked vitals. They promptly wrapped her up and headed back to give Mimi a glimpse before carrying her off to the ICU.

12:05 - This is the picture I posted in the last post with Mimi and Baby. They didn't put her down, but Mimi at least got to get close to her sweet Mia, even if for but a moment. I cannot express how heartbreaking this was to not be able to have those first moments of life to hold our baby. We recognize so much that went well today, but it sure didn't make it any less heart wrenching. Love you Meem. You did wonderfully.

12:10 - 2:30pm - This time was critical and surely many things were being checked and the like. We were mainly told that they were putting in an IV. We wondered how it could possibly take this long, and later saw all of the pokes in her little hand. They had a tough time finding a vain with her lowered blood pressure. Since there is a smallish window to maintain the Ductus Arteriosis open. I was getting concerned. In the end they put the tubes in through the umbilical. When an infant is born, each has a hole in the heart (Ductus Arteriosis) that closes anywhere from hours to days (or longer) after baby is born. They use Prostaglandin to keep the hole in the heart open in a case like Mia's, where the circulation must be different in order for half of the heart to circulate sufficient blood for the entire body. Aunt Nat, please feel free to correct me on all the equivocations...

2:45 - We get to see baby & Mimi gets to hold her for a couple of minutes. (It was probably only for 3 minutes or so). Again, heart wrenching. She is so little and so sweet. Sad to see her hooked up to machines. We just want to scoop her up and take her home.

3:50 - Mia and I head to Children’s Hospital, one mile away. Riding with us was another baby girl born 45 minutes after Mia, and with the same Aortic Stenosis problem. They are even in the same NICU room.

The rest of the day I met with various doctors and nodded my head at some very sophisticated verbiage. In a nutshell, the doctors are collecting more information and are going to put their heads together to make a plan on moving forward. The option of inserting a balloon as a first tactic at bettering Mia's heart has been tossed around, so we shall see if that is further presented. If the balloon (catheter) is used, that would not serve as a cure, but as a potential method to postpone transplant or other serious surgery until Mia has grown. This has already been discussed, so it would surprise me if it is the direction they take, though something less invasive than transplant would be welcome.

10:30 - The decision was made to put a "pick line" in Mia for better access for fluids. The UBU(I think that is what they called it) that is, the lines into the umbilical, were not deep enough and therefore were not reliable enough. Now the pick line will go from the arm into a main artery almost all the way to the heart. This way, medication can be added to the blood stream instantly.


I have to mention that our doctor Suzanne Peterson was awesome. Very kind and skilled. Also, our nurse saved the day. Tami was great as she took charge, was gentle, and was just really on top of things. I think we love Tami.

Thanks to family and friends for all that you have done. I sent out a couple of mass text messages and it was fun to hear all of your support. We are continually grateful. Thanks to a loving Father in Heaven who watches over us, and for the spirit of peace that has brought us comfort and hope. Your prayers have been felt, and surely answered.

Mimi, please make any corrections. My mind has stopped working.

This is Mia's Limo. Her preferred method of travel.


Mia's first car ride!


3 hours old. Sleepy time.

Jul 8, 2008

Mamma, Mia!



Baby Mia has arrived! She was born at 12 o'clock high noon. She weighs 6lbs 14oz and if they know her length, they haven't said. She is currently breathing on her own and so far is sustaining her own life. We haven't been able to hold her yet (two hours later) and are going to whisk her off to Children's Hospital as soon as they get her IV in. She is beautiful and (we hear) that she has a good cry. Mimi is doing good. Just really tired. Oh, and her hair appeared blonde when she was born, which is different than our other two who had really dark hair at birth. Jensen's hair was almost black. Mia's a light brown. I will soon turn blonde as did Jensen's and Ellie's.

Jul 7, 2008





On the fourth we went to my dad's house on Lake Steilecom. We had a fabulous dinner and were able to cruise out on his boat to watch all of the fireworks. Some of the lake houses were producing professional caliber fireworks displays. It was cool to be on the lake and be able to see for miles, all the while watching as most of the explosive devices were pointed out to the lake on which we were floating. Dad's neighbor had to have spent THOUSANDS, by the amount of fireworks that were going. Above Ellie is standing on the engine mount of the boat, holding onto the ski rope pole. She is fearless. Reminded me of the person on a sailing ship in the crows nest.



That's my boy. Jensen is following in his fathers footsteps in his interest in blowing stuff up. On the fifth we went to my mom's for the usual celebration. There were boxes of explosives ready for ignition. Jensen was so cute. At first He would hold my hand as I lit, but in no time at all he was cruising around with his own personal "punk" and it was all I could do to keep up with him. He would light, and then head back to get another. So cute. I realized that though he would cheer and smile from time to time, he was mostly business. Like he was on the clock and lighting fireworks was his job. He liked all of them, but I think the parachutes were a big hit. Fun to chase them. Ellie was in the action as well this year. In years past she has headed for the hills, even at the sight of an unlit firework. Needless to say, no one got burned or injured, even though we at times would "accidentally" tip over a mortar and send it into the treeline. There is just something exciting about blowing stuff up, but even better when it blows up in a place that isn't expected.

Jul 3, 2008

Church Kids

Ellie was all dressed for church when her brother decided he was going to wear his "cowboy" belt his papa gave him. She of course promptly found hers and put it on over her dress. I love these personalized belts... mostly because they are from their papa. With these matching red cowgirl boots and hair all done up- I couldn't resist taking these pics. Although no one appreciates how cute kids are as much as their parents do, she did have a few fans at church.

Jensen has been dressing himself for over a year now, and does a great job... LOVE the socks! The other thing I love about this picture his how prepared he his for church(notice the coloring book and scriptures). I don't know how I lucked out with such a responsible little man. We rarely have to prompt Jensen for things he might want to take. Ellie on the other hand plops herself down in sacrament meeting and insists that her every little desire magically comes out of our church bag. OK, the last thing I love about this picture is the band aide on her forehead. She came home from a family reunion with a large bump on her head. It just fits her personality.

Jul 1, 2008

Baby coming in a week

Yes, sounds like the good doctor wants to induce Mimi on Monday night. The goal is to have the baby on Tuesday morning so that the neo-natal team will be together and fresh with a good nights sleep. If all goes as planned, Mia will be born on Tuesday morning. They want to control the circumstances of the birth, which will allow the team to be prepared. The plan is the have the birth naturally and as soon as Mia is born, ship her over to Childrens Hospital until a donor heart becomes available. It seems our long wait is coming to an end. It has been long anticipated, so we are very excited to meet our sweet little baby. AND, last Thursday we received really good news from Dr. Stephaneli that Mia's heart wasn't leaking as much and that he didn't see any reason to take another look at mia's heart for another two weeks. (This is a big deal) Well, by the looks of things, he won't be able to see baby again in the Tummy, but as a new born baby. Yeah!